Cimzia #3 and iHealth Log Review

On Friday night, I took my third set of Cimzia injections. I had to do it a day earlier than my previous injections due to some family commitments going on this weekend. I again got the immediate bad taste in my mouth and itchiness that came with the initial 2 rounds of injections, and this time I felt very shakey and jittery for about 24 hours after the injection. Otherwise, I feel like I have done very well. I spent Saturday doing some spring cleaning at my house and preparing for my dad’s birthday celebration the next day. Today, I have spent time with my family and focused on my lengthy to-do list for work. I did my research before starting Cimzia, so I am familiar with the possible side effects, as well as the “internet side effects” that many people talk about on the Cimzia message boards. I feel very grateful to have not yet experienced any major issues with the Cimzia injections, and I am still very hopeful that they are working. I had two small skin lesions this week, but I also had arguably the most stressful week that I have had in months, so they could easily be attributed to a stress-induced flare.

I recently got an iPhone (I’ve been a Blackberry woman for four years, but was unsure that the company would be around for the next two years before my next upgrade). I have a Mac, iPod touch, and iPad, so I am familiar with many apps. However, I was looking through the app store for something that would help me keep track of my current medications and symptoms. I have considered in the past just tracking these things on the calendar in my phone, but it can be difficult to determine which notes are directly related to my health and which are other unrelated appointments. 

I found the app iHealth Log (a free download!) and gave it a try. This app allows you to record all of your medications, as well as weight and other measurements. It also has a “diary” where you can create an entry when a medication is taken or a symptom appears. Most importantly, it has an “In Case of Emergency” section where you can record critical medical information as well as an emergency contact and the medications to which you are allergic. 

I always find it difficult to remember exact dates or symptom durations when I’m in the middle of a doctor’s appointment, and I always strive to be as informed and data-driven in my decisions as possible. I love that this app allows you to record anecdotal information in a “diary” format, then easily access each entry to refresh your memory or supply you with specific details. I would love to see this app expand to keep track of more specific lab work results or compile doctor’s appointments; I would also love to be able to export the information that I log to other file formats. Overall, though, I’m impressed with the user-friendly interface and stream-lined approach to what can be a very complicated data system. 

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4 thoughts on “Cimzia #3 and iHealth Log Review

  1. Alison,
    I’m so glad this seems to be working for you! I also wanted to let you know that I shared your “Spoon Theory” post on the BD Land Facebook site- I thought it would be really good for people to read your thoughts on it! If you don’t want it up, please let me know! But in the mean time, stay well, and I’ll be thinking of you!
    Nikki

  2. Alison,
    I was wondering how the Cimzia is working for you? I’m at my wit’s end at my treatment. I’m still flaring, and some symptoms are getting worse. I was wondering if you’ve had any success with it? Let me know, and thank you,
    Nikki

    • Hey Nikki,

      The Cimzia is working well! I get a bad taste in my mouth and an ugly headache each time I taken an injection, but otherwise I have seen great results! I’m sorry you’re having such a hard time – hopefully it gets better soon!

      A

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